My 8 year old daughter was just diagnosed last week after being rushed to the ER with DKA (just the first new term we had to learn on the journey). She was diagnosed with T1D and released a couple days ago. She’s had the best attitude so far especially with her parents learning to check her levels, giving injections, and calculating out the proper insulin dose. We’ve tried to make sure we have as many free foods and lower carb foods that we can find to make sure we give her options so that she doesn’t feel like this is a punishment. I know that she’s going to get down at some point, which is a totally normal emotion to have as we adjust. My wife and I are having a harder time because we can’t fix it, we feel horrible having to poke her, and feel like we’re drinking out of a fire hose learning.
We have our first appointment with an endocrinologist this week. We’ve been a little concerned that her blood glucose levels have been anywhere from 200-350 mg/dL before meal time. We’re dosing as prescribed by the hospital and are worried this may cause issues. I’d appreciate any experiences and advice on coping with a newly diagnosed child and on managing glucose levels to start.
That may have been a bit lengthy, but it feels good to get it out and see in the forums that we’re not alone.