I was diagnosed when I was 8 years old I don’t know what life is like without it ! The older I get the worse this is getting I went from always having high sugars and being ashamed of it and getting the heat from my doctor about it to the point I’m 25 and I can go weeks without checking my sugar and I got a A1C reading of unknown because it’s over the limit their machine can read which is 15.5 ! I’m always sick waking up about 7 times a night to pee or drink water I’m on the road to finding someone to talk about this but I feel I’m the other one in the world that has no control over diabetes it’s controlling me.
Hi Chrystalee @Negronc, first let me Welcome you to TypeOneNation forum, a place where you can share with and lerrn from and get support from others like you who are trying to figure out how to live with this horrid condition. You may find that you are not “the only one in the world that has no control over diabetes”. I’ve had this diabetes thing for over 60 years and I haven’t yet been able to control it, but I’ve learned how to manage it fairly well and live with it. I will talk with you any time you wish.
Back in the day [the 1950’s], if there was anything like a BG Meter or HbA1c, my numbers would probably be like yours. I had an awakening in the late 60’s and woke up to the fact that I had to do something, so slowly, very slowly I turned my life to caring - I became motivated. You too can do that and many people here will offer you suggestions.
i accept you as you are and will be here.
Hi Chrystalee. As Dennis said, we’ve all been there. However, I don’t think it’s impossible to control diabetes, it does take a lot of effort though! It’s really up to you. Your doctor, friends, and family can’t be with you 24/7. You have to take control and be responsible for your own well being. No one else can do it for you. Your endo is there to help you. Use that.
Start by checking your blood sugar before each meal. Then after each meal. Show these numbers to your endo and ask him/her what you can do to get these numbers more in range. This is how you’ll get the help you need, by giving them the information they need to assist you. Another option would be to wear a CGM. This will show your endo what is happening with your blood sugars. Many endo’s offer devices to wear for a week or two if you don’t want to use one all of the time. - - If you choose to use the one from your endo, you will still need to do the finger sticks, whereas, if you get your own, there are options now available with which you don’t need to do them.
These are just some suggestions to help you start to bring your A1c down. The main thing is to know what your sugars are in order to adjust your dose to correct for the highs/lows.
T1D 54+ years and counting!
Hyperglycemia can kill you. Its sounds like you are dangerously high and need to be admitted into a hospital or facility that deals with managing diabetes.
Crystalee, we all feel your pain and frustration in this community. There are so many tools available that you can use these days, you don’t have to suffer. Based on what you said, I assume you don’t use a CGM. I really think this is your first step towards gaining control. You don’t know what you can’t see. Going form 6-10 finger sticks a day with my daughter, or a CGM (288 readings per day) was a huge game changer. We learned that we didn’t really know how it was impacting her, and we made a lot of changes to her insulin regimen, and it has been huge. Her last A1C dropped from about 9 to 7.3, which our Endo said was pretty outstanding for her age group. Your CGM will become your best friend. And, there are plenty of options depending on exactly what you want and what you can afford. You also didn’t say how you are taking insulin, but I am assuming you are not on a pump. That is very much personal preference, and there is really no reason you can’t make major improvements, even with injections. And, are you seeing an Endo, or just a family doctor? Be sure you are using all the resources that are there. Also, contact your local JDRF office. They are a great resource, and I am sure they would happily put you in contact with people that can help you. At this point, your body is taking a beating, and the longer you wait to take control, the more irreversible the damage will become.
Hey, my a1c is past 13… it’s been that way for a while, and I can’t seem to manage it. I’m only 16, I’ve had t1d since I was 6. It’s never been managed and my family never educated themself enough to where I was able to be healthy. I want to do this on my own now since my family is no help rly, which ik will be hard but maybe I’m hoping I’ll find help, a support buddy if u will, cuz I don’t want to be unhealthy anymore… it’s painful and I can’t live this way
@Saffire hello and welcome to TypeOneNation.
You can have any level of control you want to have. You’ll need the help of doctors and sometimes friends, and you will need to test a lot, especially at the beginning. Do you have enough testing supplies? Is there a doctor you are seeing?
I am afraid it’ll always be a pain in the “___”, well I mean fingers and wherever you test and inject or use insulin. But with help it can be less of a pain - hopefully manageable. I spent years doing the minimum possible to stay alive but now I am OK. hope you are also OK. Please check back in. - Joe
Ugh I know the struggle ur not alone!!! Hence mine is 14 do u have a pump ?