Is hair loss common among t1d women? I was diagnosed with t1d at age 12. By age 15 i noticed slight thinning that was not noticeable by anyone and it wasnt enough to make me lack confidence. My hair was very full and curly and a part of my identity. At age 26 im now noticing my hair falling at an increasing rate over the past 3 years. It looks very unhealthy and thin, especially at the crown of my hairline. I have thyroid antibodies but no thyroid disorder yet. My a1c is at a 7.8, not perfect but not too alarming. Last endo told me that it’s diabetes related and to accept it, but i want to hear from others.
Same for me. Diagnosed at 11, I am now 33. It wasn’t as bad back then as it is now. 2 years ago I was diagnosed with an under active thyroid, so the meds help, but my hair is still super thin. I take daily biotin to help. Not much else to do though.
Have you checked in to PCOS (polycycstic Ovarian syndrome) at all?
I was diagnosed at 13 and aeound Christmas time my hair started to thin. So i went to a doctor and they said i have non scarring alopecia. The doctor had said that having an auto immune disease could possibly trigger other diseases.
Same with me… I had thick hair and now it’s super thin post diagnosis.
I tried biotin… didn’t help much
Dr said they think it was stress related
I am only 17 but I noticed I lose more hair than normal. People said it was just a phase though. Thanks for letting me know I am not the only t1d who deals with this!
Be sure to speak to your Diabetes provider and dermatologist. I don’t know if hair loss is common for Type 1. I am older than you so my experience may not be the same. I’ve been using Minoxidil 5% for women and Viviscal tablets. They have both helped me a lot.
I was diagnosed with Type 1 at 59 five years ago. Before my diagnosis, although there were no noticable clumps of hair falling out my hair went from very thick and fine to almost non existant and fine.
Once diagnosed and under control (A1C hovers around 6), my hair came back to the same thickness and growth speed. My hairdresser says she has noticed hair thinning in a lot of her Type 2 clients. I am assuming since the hair follicles are supplied by small blood vessels they have been affected by the diabetes.
It is a topic not well researched, and certainly not talked about.
It would be good to talk with your doctor. Aleopecia is a hair-loss condition and autoimmune issue. Since T1D are susceptible to autoimmune disorders, you should check with your professional.