Is there anyone who has gone thru the hoops for getting child on disability to help with costs? Am i weong to even consider it? Bills are unbearable as all parents know. Thank you!
I’m a single mother of 2, my 12 year old son was diagnosed at 7. I’ve filed for SSI/Disability twice within the past 1.5 years and have been denied twice !! My son has been hospitalized 3x since last March with DKA. I’ve been unable to work due to all of this. If it wasn’t for my mother allowing us to move in, I’d be really lost. But that doesn’t help with a car or income. I too am wondering why Disability is available if those of us who actually NEED this, aren’t able to qualify. We live in PA and I’m going to apply in office this time…fingers are crossed !! Wishing you lots of strength through it all. -Courtney
I hear what you are saying, In 1990 the United States Congress declared that persons with TypeOne Diabetes are permanently disabled - Public Law 101-336 known as the Americans With Disabilities Act; T1D was the only disease identified by name.
If your children are being denied this benefit the administrators of SSI/Disability Administrators are acting contrary to law and I suggest that you ask the United States Attorney in your area to represent you / your children; apply through the public relations help at the US Attorney.
I also suggest that you call/write to your three Congressional representatives [one in the House of Representatives and two in the Senate and ask their immediate intervention [this is an election year] - these people will represent your cause free of charge. Be certain when speaking with these people that they truly understand that TypeOne Diabetes is an autoimmune condition and has been declared by Congress to be a permanent disability.
I know several who have tried and all have been denied. SSA regards T1 as not qualifying as disabled. However the complications of diabetes are. So kidney disease, blindness, extreme neuropathy are disabling. But to my knowledge having T1 is not a qualifying condition.
I am sure someone has made it through with a T1 child, but I do not know any, good luck.