I am part of a small group of parents working with the JDRF office in Los Angeles to create a parent-to-parent volunteer outreach program. Its purpose is to provide an immediate contact (within 48 hours) for parents of newly-diagnosed children who are going through the anxiety, fear, and grief of those first weeks and months. This is meant to offer personal, "household" level support to supplement the medical immersion the family is receiving from the hospital or diabetes clinic. The JDRF embraces our idea and is working to adapt the "mentor" model from the national office to meet our needs locally.
My question to you is: what advice do you have for us? What were your questions and needs that you wish you could have asked of another, more seasoned parent? Would you have welcomed this outreach? How soon after diagnosis would you have welcomed this contact? Would it have eased your transition into your new life as the parent of a Type 1?
Thanks for your ideas and feedback!