Hello all! New member here, just can’t figure out what’s going on and neither can my docs so I thought I’d see if I’m the only one this happens to. If I’m in the wrong spot, please let me know. I’m a 39 y.o. male and was diagnosed at 21. Always pretty well-controlled (a1c usually bw 6.5-7.5 and with CGM), but about 7 years ago I started having periods of 3-4 days where I would be ridiculously insensitive to insulin and hyper-reactive to any carbs. I mean, I’m basically quadrupling the insulin I take during these times to even keep my BGs from being outrageous. For the first year or so, they would occur about once a month or so, then they would go away for a few months and then return at the same rate. About two years ago, they started happening once a week. It’s always accompanied by serious bloating/puffiness from water retention, flushing, heartburn, and general discomfort. My endocrinologist has run tests about 20 times at different stages of these bouts and can’t find anything abnormal. I’ve seen a couple of immunologists, a gastro doc, and a cardiologist, and they’ve come up with nothing.
Does anyone have ANY IDEA what’s going on here? SO frustrating. Thanks in advance!