Just looking for a little support and/or questions answed

(Simon) #1

Hello everyone,

Fist of all, thank you for reading. I just hit my 10 year anniversary this month of being diagnosed with T1. I was 26, now 36. Though I have always had a certain level of anxiety about the disease, it has for some reason really been giving me trouble the last 2-3 months.

I guess for the most part I (think) I have done “ok” with my diabetes. Most A1c are 6-7, but I used to deal with a lot of lows, I had 1 seizure and 2 car accidents bc of dangerous low blood sugar. My biggest fear is dealing with diabetic problems later in life. Things like constant pain, neuropathy. Hence, I would rather lean of the low side of my blood sugars. My thoughts were that if I go low, I can just grab a juice box and get it back up pretty quickly, but if I go high, it’s injection and waiting for sugar to stabilize and a general longer time period being high. However one issue I struggle with is night time highs. I work in a restaurant and getting done late, being hungry and not being able to regulate enough before sleeping ending with highs in the 300s or worse occasionally for a few hours overnight until I can correct in am.

So that’s me, I just got on the freestyle libre and it does give me better perspective. I used the deacon for a few years but had difficulty affording it. I am always trying to be better but as we all know, it doesn’t go away and we all struggle with it, and have weak moments.

So I guess the reason I bring this up, is multi reasoned, I get really nervous that any time I get a tingle in my toes or foot, that the “end is near”. And I just don’t know how to get over it, there are times I feel paralyzed by the fear of something becoming a permanent issue. How do you all deal with this? How do you know if something is a big deal? Or maybe you just slept weird and it goes away. For those of you that do have complications, how do you deal with it, emotionally, physically?

Thank you for reading and hopefully responding, I appreciate any advice.

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(Dennis J. Dacey, pwD) #2

Hi Simon @SiGuy , Welcome to TypeOneNation Forum! Here you will find that you are not alone - your anxiety, frustration, your Highs and lows, and everything else you will find someone here who is experiencing some of the things that you experience. I was diagnosed at an age 10 years younger than you and now I’m more than 40 years older than you and I still have all my fingers and toes and I too awake in the morning with funny aches but eventually they go away and very rarely are caused by diabetes.

I can see how your work schedule could really cause havoc with your BGL management, missing sleep too is a major factor too with BG and life in general. On workdays, what is your meal schedule? Does your meal schedule differ on non-work days?
Concerning your “lows” - for me, I’d much prefer to be a little higher than risk hypoglycemia - and NEVER get behind the wheel and drive without first knowing that your body glucose level [your BGL] is at a safe place and then stop after an hour of driving and recheck BG. Diabetes didn’t cause those two crashes [not accidents], they were caused by negligence.
HbA1c in itself does NOT tell the whole story. An A1c of 6.5 means that your average BGL is 139 mg/dl; this average could be a BG value of 259 mg/dl combined with a 19 mg/dl. It could be your swings from high to low that are your greatest concern - they were for me. For years, I thought I was doing really great because my A1c hung close to 6%; a couple of times my wife found me passed out - one time the medics trying to awaken me got a BG reading of 9 mg/dl; the guys first on site laid me out as dead. That scared me and now with a Dexcom continuous monitor I’ve eliminated lows and greatly narrowed my fluctuations.

I suggest, that rather than dwelling on the negative that you instead work toward living the fullest, most active and productive life as possible. Live your dream! … and make diabetes fit your lifestyle. That doesn’t mean that you should forget the dangers of diabetes, but rather use them as motivators.

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(Tyler) #3

You are 10000% not alone… I’m the exact same way!
i’m a very ‘healthy’ individual but this is on my mind on a daily basis!
The times when it’s not on my mind as ‘bad’, i realize it’s when i’m busy, working out, having fun, etc!

i started a channel for tips thoughts advice and would love for you to check it out…

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