Karly my girl

(Kayla) #1

Ok my daughter was in the longest time of being in the honeymooning stage and now she is out of it. Does it get better or worse from here idk and i am scared.

(Dennis J. Dacey, pwD) #2

Hi Kayla @Kayla.shouse, I have had diabetes for over 60 years and I can say it is never gets easy.
Wat does happen when one deals with this for a while, and understands he her/his body works, managing diabetes becomes second nature and is less of a burden.

(Bill) #3

Hi, Kayla @Kayla.shouse ,

It’s okay to be scared. But it is important to learn everything you can, and be prepared.

How old is your daughter? The challenges are different for a parent with a three-year-old with diabetes, versus a fourteen-year-old. Managing diabetes is all about managing (“coordinating”) insulin, diet, and exercise. With a child (the three year old) you have to do all of the “coordination” yourself. But with a young teenager she can (and should) quickly learn to help.

Let us know how old your daughter is. Other parents with children near the same age will chime in.

Bill

(Kayla) #4

My gurl us 4 years old and she dont want to learn. She will be 5 in june and we will bed throwing a party for her so it us difficult for me

(Abby) #5

Hi Kayla @Kayla.shouse!
Transitioning out of the honeymoon stage can definitely be tricky. Does it ever get “easy”? No. But you will get used to it, and it won’t always be as overwhelming as it is now. When I was diagnosed, my endo told my parents that the goal was for T1D to be “as small a part of my life as possible”, and I’ve found that as time has passed, it’s become smaller and smaller.
It’s important to approach T1D with the right mindset. For me, one really important thing to remember is that it’s ok to make mistakes. There are going to be days when you do your very best and your daughter’s blood sugar still ends up way off. On those days, don’t be discouraged–just take a deep breath, figure out what you could’ve done better, and learn from it!
Since your daughter is so young, you’re most likely going to be managing her care for her. That can definitely seem scary. I recommend connecting with other T1D parents, either in your area (search on the JDRF website to find your local chapter) or online through websites like this one. (If you’d like to talk to me, feel free to pm me and we can trade contact info.)

3 Likes
(Justice Remington Cagle) #6

It doesn’t get better, the blunt truth is it gets insane and difficult. I have had diabetes for 5 years and it gets scary but the one thing you can do is stay calm and get control, it’s gonna move all over and basically you just gotta be careful and it’ll be ok and easy as long as you manage properly

2 Likes
(Mike) #7

Kayla I’ve been T1D for more than 40 years, and I can agree with everyone that it never really gets easy. I’ve found that when I developed a schedule such as eating at regular times and similar amounts it makes control easier and I’ve been able to put my thoughts and anxieties about this on the back burner. Things will never be as perfect as the nondiabetic endocrinologists will want them to be but do what you can. I can remember whole periods of my life where I just took the dosage recommended of insulin and went by how I felt rather than testing. Testing wasn’t as easy or convenient as it is today so it just didn’t get done as often as it should. It would probably be worthwhile to try and find out if there are any groups where there are type 1’s of a similar age. I think I finally took ownership of my care and condition when I attended a sleep away camp for diabetics…

(Kayla) #8

Hey it would be nice to talk to someone that has been throught is like you

(Abby) #9

Ok! Pm me and we’ll figure out the best way to get in touch.

1 Like
(Catherine) #10

I feel as though I could have written that. Today I went out on leave again because my new onset 5 year old needs my guidance with daycare and school which makes it impossible for me to work and her live her life.