I was born with Spina Bifida (a rare form, and did not suffer nerve damage until early adulthood, but am now in daily pain), I was diagnosed with asthma/allergies at the age of 5. I was diagnosed with T1 at 14, Hashimoto’s in my mid 20’s, and after suffering for 10+ years with painful tendinitis I have recently been diagnosed with RA and Asperger’s.
So basically I’m in pain every day. Some days it’s more manageable, my mobility is affected, and my energy levels can go from high to non existent in a moment. I try hard to eat well but I often don’t have the energy or am in too much pain to cook. My disabilities prevent me from exercising (except for wheelchair soccer, which I love). I am trying to get a wheelchair of my own but insurance isn’t cooperating. I often get depressed because I don’t have access to the mobility aids that would allow me to live a more normal life and am instead forced to suffer through a part time job (that I love but that leaves me in bed in pain for days when I’m not working) just to survive. Outside of work and the grocery store I’m pretty much stuck at home. I can’t go for walks or even go shopping if it involves more than 1-2 stores.
All of these things make managing my blood sugars difficult and inconsistent. Days where I’m in pain, low energy or depressed my blood sugars often run high because I don’t have the ability on those days to eat or deal with it properly. I am recently married and we want to have a family but just keeping my A1C in the 7’s is extremely difficult let alone getting it low enough and stable enough to get pregnant.
What works for you guys on your bad days? Do you find that your T1D affects your other conditions and vise versa? How do you you achieve consistency in your diabetes management?