Alannah, I had a friend on one of the old Diabetes List that had that problem. She explained that her home glucose test averages were always higher than her A1cs. Her endo found that her blood chemistry doesn’t have the “normal” chemistry that the test is based on. In fact her red blood cells are replaced faster than normal, so it changes the rang for the readings. So every A1c is multiplied b a factor they determined after a while, and it lines up with her home tests now.
Hi AlannaHC. Please do not allow T1D to dictate to you, your mental state and well being. There is no need to be despondent or to feel that the problem is insurmountable. I was diagnosed in 1950 and at that time treatment was very rough and basic. No mod cons or technology to assist. I was eight months old when diagnosed, but fortunately had a Mom who was very strict and with her the buck stopped right there. She taught me to be responsible, and I had to abide by her rules or else.
Now after almost 70 years of good health and a wonderful wife and friends I am so happy to be alive and very blessed.
Exercise is very important (Walkig for myself) as it releases all kinds of great enzymes and " I feel great chemicals in the brain." Test Bg 4x per day and learn for yourself the amount of insulin to inject per your daily food intake and food type and amounts that you ingest. Surround yourself with positive people who encourage you and can give you great tips and advice. Do not allow yourself to be influenced by negative, critical people. I do not and haven’t been to see an Endo or Doctor for the last 20 years as they are so negative and unhelpful. For myself, BG control is common sense and a will to succeed.
All the very best and please do not ever give up.
@Laramie My friends learned to give me insulin when I used pens because I made them. I was very uncomfortable doing it in my arm so I made them do it, but I eventually learned. Now that I have my pump, I don’t feel comfortable putting the pod site on my leg, but I was always injecting my insulin pen in them. You’ve had diabetes for awhile then!! My family knows it better than my friends because luckily half of my family are nurses. My sister is a pharmacist and her husband is a doctor so they really help me out a lot!
@lauraquinlivan I actually had a friend who was misdiagnosed as well because she was overweight. The doctors put her on Metformin for 3 months and when they realized her blood sugars were not getting better, they then diagnosed her again, this time correctly with Type 1. It’s crazy how even some “diabetic” doctors or even specialists can misdiagnosis. She is in her older 30s now, but she was in her older 20s when she was diagnosed.
I totally get coping with diabetes is very tricky! My name is Cassidy and I got diagnosed when I was 6 years old and now I am 13. I would love to chat more with you! I have and still experience some of the things that you have it is hard and I have been wanting a friend who understands what it is like to be a diabetic! I would like to maybe get to know you better and hear from you sometime soon!!
@cassin24 Of course, Cassidy! I would be delighted to be your diabetic friend. I think this website creates a lot of new friendships and it’s awesome! I swear I am still learning new things everyday and having those trial & error stages coping with diabetes.
I wrote you back on the other chain we have!! I am so glad to hear from you!!
I have replied back to you!!
Hi Sydney! I completely understand how you feel, my friends do that all the time. Like if I’m high they’ll ask me “do you need to eat something?” And I’m like no, unless you want me to die. And they same thing when I’m low but they’ll ask do you need to take insulin. And I’m like no. It makes me so mad that none of my friends truly know what it’s like and how serious it actually is. They’re always saying they understand, when In all reality they can’t.
I was wondering if there was anybody around my age?
1’m 14 going on to 15
Hi chloe. I am your age I am also 14 going on 15. Would you wanna talk sometime?
Hey! I’m Perla and I’m 13 years old and have had diabetes for 11 years, an I have still never met anyone my age with diabetes.
It not usually my friends who say that but I completely understand. Usually, when I’m somewhere and there is an adult they will ask the same thing, a lot of people know what it is but not how to treat it. but what kind of annoys me is whenever I’m angry my family always asks if I’m low and it really annoys me because usually, I’m not.
oh my gosh seriously that happens all the time! I hate it. But what bugs me the most about that, is when I’m annoyed nobody will ask me if it’s my diabetes they just assume it’s because of it. Do they also ask you if you have " the bad diabetes"? It’s like there is no “good diabetes” people who assume really bug me.
I think we should talk sometime Perla.
Kaylee @22khackwell, I hear you there. A relative visiting here - a long-term RN was talking about her friend who “just caught diabetes” and said to me, ’ but Dennis, she has the bad kind [lifestyle diabetes] and not the good kind like you have’. My reply, before walking away, was ‘yeah, I got the good one that was supposed to kill me in the 1950’s’.
I get that question all the time, one time my friend answered for me and I just kind of looked at her because she said I had the bad type. I just responded with they are both bad so there is not really a good type and both have their bigger problems.
I know someone your age, you’re not alone.
Hello @hanstan I was steered towards JDRF in search of finding a community of diabetics who understand what I go through. I have definitely found a sense of community. I recently started blogging about my diabetic journey at myathleticdiabetic.com. It feels very therapeutic to write my story out. I am always looking for diabetics to connect with as well. I have all the social media so we could connect there. Diabetes definitely takes a toll on my physical and mental state. But I try to stay positive and keep pushing forward.
Seriously! I’m so glad there are some people who understand. And let’s be honest that was pretty funny.