Hi Lauren. First of all, hugs to you! You are doing great! Everything that you are feeling is totally normal, and I can relate 100%. My 3 year old daughter was diagnosed 2 months ago. Unfortunately, I am unable to stay at home with her, so we are relying heavily on a network of caregivers including her preschool and family members. We are training EVERYONE about her T1D: How to do blood sugar checks, what the numbers mean, how to treat low/high blood sugars. We came to the realization that this is not something that we should face alone. If anything were to ever happen where me or my husband could not be there, we want to be confident that our other family members could care for her.
One of the best things we did was to get her a CGM. This was possibly the biggest stress-reliever for us. Early in her diagnosis, she would have frequent lows as her insulin was being adjusted and her appetite was going back to normal. The uncertainty of her blood sugar throughout the night kept us in constant fear of the worst.
It might be helpful for you to reach out to your local JDRF chapter and get connected with other families in your area. My husband and I are actually going to our first local event in October at an arcade where we’re hoping to talk to other parents about our concerns and to find out what “normal” really is. I also think it would be cool for our daughter to have some friends that are similar to her.
While it definitely sucks that our kids must live with this condition, I find comfort in reminding myself that by being diagnosed at such a young age our kids will never remember a time that they did not have T1D. This will become part of the norm in your life, and our kids will still be able to live full lives.
Best wishes to you and your family,