I also wish there were support groups in my area, however, Ava is the only diabetic in her elementary school. So far I have only met one other parent in the whole school district that has a type 1 child, and he is a senior. we do not have type 1 in our families, however my father has 2 auto-immune diseases, so perhaps the genetic link came from that direction..who knows?! When she was diagnosed, she was very lathargic and thin, not to mention the obvious excessive drinking and bathroom trips. her normal weight was 36lbs,..she weighed 32lbs when she was diagnosed.
the Omnipod really gave ava her old life back. she feels like everyone else, and can eat when they eat, not when her nph is peaking. she also loves that she can do anything while wearing her pod, and that she doesn't have to deal with tubing is awesome.
Ava started with nph and h, so we did see some lows,not much of a honeymoon phase for her....but now she wears a continuous glucose monitor, and it has helped us prevent her lows. the technology that is available is so incredible, and her ac1 has improved as well as her overall mental and physical health.
how is brooke adjusting? what is the worst part about all of this for her?
there is another group that i belong to, www.childrenwithdiabetes.com and there is good information there as well. we attend their annual conference in orlando,..it is great for ava to see so many other kids her age, older and younger. it seems that she enjoys being like them.
do you have any other children,..my younger son Ben (4yrs) will ask ava if she is low, or what her number is..it is really neat to watch him have such concern for her and realize this is serious stuff. especially since they seem to be at each other fighting so much!!
Cheryl
