o lately I have had non-stop occlusions on my T:Slim insulin pump. And i mean non-stop; for note i use contact detach infusion sets(they are steel and can not kink or anything) and Novolog u-100. So after hours and hours of tech support and days and weeks of feeling like death, constant highs, highs without occlusions, and then occlusions when I attempt to do a correction at 2 am bc I haven’t gotten insulin all night, I have some thoughts and would LOVE some input.
So in March I started having a LOT of GI problems, bloating, upset stomach, inability to eat certain foods without being sick, etc. So I talked to my endo (the office I am currently in is less than helpful, but that is a rant for later.) they decided that I need to see a specialist bc they believe I have full blown Celiac, which is not uncommon for type 1’s to develop over the years, and i’m on year 26 now… Anyway, so about the time all of that started with GI, all of the occlusions, bad sites, highs, highs for no reason etc. started as well. Now, I have been on Novolog for 16-ish years, give or take, but I started having to take shots pretty constantly, and finally got long acting insulin called in(with no instruction or anything, like I said my endo office is god awful), but once I started Novolog injections on a daily basis I noticed every time I do one, I will have a huge red hive like welt come up afterwards and it will last for hours(6-8 typically); the long acting insulin never does this.
My question/concern/“theory”: Novolog has brewers yeast as a stabilizer, has anyone ever had such an issue or known of any association between celiac (or the like) and Novolog? Or has anyone ever had a similar experience? Is it possible to become allergic to insulin because of an ingredient like brewers yeast? I go back to my terrible endo next monday, and plan on talking to her then, but I would love for anyone to give some input… I also think this could be causing the occlusions as my body seems to be attacking the infusion set and insulin.
Also, my endo was supposed to refer me to a GI specialist as my insurance requires a referral, but they still have not and it has been 6 months. I have a new pt apt with a PCP on the 21st and plan to get referrals to a GI specialist and a new endo.