Single parent with newly diagnosed 10yo boy

(Maria) #1

Hello :wave:,

My 10 year old son was diagnosed on December 22nd when I rushed him to the ER after a bad bout with Type A flu. The triage nurse (thankfully) recognized the symptoms of DKA and tested his sugar (which was at 660 :anguished:). Everything was a blur after that… I knew absolutely nothing about T1D. I do now!

As a single mom, I am feeling a lot of pressure to be strong all of the time but the what-ifs and unknowns keep creeping into my head. Up until now I have been trying to take a deep breath and push through them, however it’s not healthy to hold it all in. Everything is not “fine” but it will be… and I have to learn to work with that. I made the decision to join this forum not only to help me through those “moments”, but to educate myself and be part of future solutions. I am scared, for my boy, even terrified at times, but I am also very optimistic that with the advancement in research and technology he will be able to manage this fairly easily.

For now we are using the Lantus and Novolog pens but I plan to talk to the endocrinologist eventually about the pump. I also did some reading on the Dexcom for monitoring. It is especially appealing to be able to see his numbers throughout the day when he is at school or other activities. Thoughts on how soon is too soon to switch to one of these devices? He is a very active kid and plays baseball 9 months of the year and loves to swim. Would one of these devices not be appropriate with those types of activities?

Lastly, is there any advice, travel tips, eating out suggestions or “things you wish you knew” early on? My son is a constant grazer and it’s becoming an issue with him getting tired of eating cheese, rice cakes or a handful of nuts. He is allowed a snack under 10g of carbs. I will gladly take suggestions.

Thanks for reading and I look forward to getting to know some of you. :slight_smile:

(joe) #2

@mbernard623 hi Maria,

first - sorry about the recent diagnosis. the first year can be tough with all the new things you have to learn. all I can tell you is that you can do it, and you can find all the strength you need.

there is no actual minimum age for a pump. endos opinions vary. you should probably get comfortable with lantus/novolog because the pump exposes you to even more difficulties (more complex troubleshooting), which can add to an almost overwhelming amount of things you need to learn. the pump and cgm are not for everybody - I use them because it’s working the best for me but I was also successful on shots.

restaurants add fat and sugar to everything. get a handbook like “The calorie king” so you have a basis for carbohydrate counting, introduce new foods a little at a time so you can figure out what kinds of foods do what to blood sugar.

I hope you have access to a CDE (certified diabetes educator) to help this first year they are crucial to getting a workable plan for food and insulin.

if you like to read there is a book “Think like a Pancreas” which has an enormous amount of information on diabetes.

(Maria) #3

Thank you Joe - I just bout the book “think like a pancreas” on Amazon! We do have access to an educator however our next clinic appointment is not until the end of the month. In the meantime I am trying to gather information and create my list of questions for them. Good to know about the pump… I had mixed feelings about it. One step at a time I suppose!

(sneathbupp) #4

So sorry to hear this. I’m a newbie, just 1 year into diagnosis. I also got so much information from “Think Like a Pancreas” . I also had to do constant grazing at first to put weight back on. I did nuts, cheese, cottage cheese, plain yoghurt, avocado. I didn’t have to bolus for these. Good luck. We’re here for you. You can do this!

(Dennis J. Dacey, PWD) #5

Hi Maria @mbernard623,

It sounds as if you are starting off on the right path and your son sounds like a wonderfully active kid - yeah, you have a handful to deal with.

@joe offerers some great advice and I don’t have much more to offer at this time other than also suggesting that you wait a while before trying a pump 0 a pump has been perfect for me. You and your son will have much to learn and one of the most important “learning” experience will be observing how different activities, different foods and insulin AFFECT HIM - as each of us is different and we do not always react the way the book says we should.

Most of all, give your son room to grow, be a great kid and don’t let diabetes hold him back - we with T1D can, with a knowledgeable and watchful eye manage our diabetes to fit full, active and productive lifestyle. Stay positive.

Continue sharing progress, ask questions on here and with his CDE and when you need visit here to vent your frustration. There are many volunteers her ready to listen and make suggestions - I’m not a medical doctor but I will offer suggestions based on my more than 60 years of living with diabetes.

(Janet Lenius) #6

Sorry to hear the awful news about your son! I was in the same boat with my 12-year-old daughter last February, when she was hospitalized for a localized infection that had gotten out of control, but the doctors didn’t diagnose the diabetes that time. They finally thought to check her blood sugar when she returned to the emergency room in March with pneumonia. She wants to do injections for the first year, just to get used to that lifestyle, then is considering switching to a pump. Sorry I cannot advise about the pumps and Dexcom. However, about snacks: my daughter will eat an entire jar of dill pickles, a handful of olives, and tablespoons full of peanut butter. She also will eat three turkey dogs at a time, beef jerky, slim jims (the “healthy” ones from the co-op). She has gotten to the point where she is able to guesstimate the number of carbs in most foods, which creates more lifestyle freedom. Hope that helps!

Janet L. from Minneapolis

(Marnoel) #7

My daughter is just over a year diagnosed, she has both dexcom and Omni pod pump. We started with the dexcom first 3 months in it takes time to get use to, so one thing at a time is easier. Then we did the pump in the summer 6 months in. The summer was easier because there was multiple trips to the endocrinologist. We love both, changing them is not fun, but seems better then 7-10 shots a day. You can ask doctor for numbing cream/ spray!
I hope this helps!

(kfmalone) #8

Maria: Congrats for being proactive, and engaging in self education. Our 11 year old daughter was diagnosed 4 1/2 years ago. My thoughts: “Think Like a Pancreas” is the best single source document out there and Gary Schreiner is a great educator (we hired him for about 4 months for FaceTime consults while getting our act together. Worthwhile if you’ve the means, but everything we learned in those sessions was in the book). We attend a good pediatric endo clinic with decent educators, but you can (and should) learn far more from other sources like Gary. We’ve learned a lot by attending the Friends for Life CWD annual conference in Orlando each summer, and it’s a great way for your son to meet other T1D kids and take a stake in his own health care. Staying on the pens for 3-6 months is a good idea IMO while you research the technology and learn how to handle manual dosing, in which you will always need proficiency, even when you switched to a pump/CGM. We’ve had the best luck with Dexcom sensors (I don’t have any experience with current generation of MedTronic CGM’s). The CGM will not work while he is in the water, but he can swim with the sensor on his skin. Baseball should be fine. I’d encourage you to adopt the CGM early, the ability to remote monitor while he is at school, and at night will greatly increase your peace of mind, and as a single parent you’ll need the help. We recently began using the NightScout Loop setup ( which has worked beautifully for my daughter’s BG control, and is something your might return to in 12 months or so when you are on top of the basics-I would not tangle with it now, but mention it because I wish I had adopted it sooner. Her A1C and standard deviation are both much better while “Looping”. Constant grazing is tough, and in time, I hope you can teach him the benefits of fewer meals/boluses. Give your self a pat on the back for being as proactive as you are, and be patient with yourself as you build the foundation for your son’s care.

(ReneeM) #9

Hi Marissa, I also have boy who plays baseball, soccer and flag football, he wears his DEXCOM religiously, using Pens now but moving to Omnipod soon…my son has adhesive allergy controlled well by Flonase to skin.

Some additional thoughts

Dexcom has a use group on Facebook that has been extremely helpful…many tricks to getting it to stick longer and also that you can get it to last more than the 7 days (very helpful with kids!) .

Popcorn is our go to low carb snack…

Parent Type One support groups on Facebook.

Food is key - cereal and granola bars, pizza and restaurant food spikes us way high and we need like 6 times the amount of insulin. A Food spike is not immediately dangerous and for us usually no Ketones but getting back in range safely can be tricky, Dexcom is big help here.

Sleep - we check overnight, most families with T1D report poor sleep.
Teenagers rarely meet thier A1C targets - talk with doc about it, punishing no help here, positive rewards can work better and teen to teen support like this site or Facebook , Snapchap, etc., key seems to be other teens who are doing well.

Therapist if they are open to it.

Double check everything w/your doc dont be afraid to speak up and ask a lot of questions!
Best of luck!!