Disclaimer—I am also venting with this letter as well as asking for opinions
I have a concern. It seems as though I am going through doctors like I go through Omnipods. I have been through 2 clinics and at least 5 doctors total since I was diagnosed with T1D five years ago. My current endocrinologist is great. He is a nurse practitioner and is also T1D. So ANY advice, instructions, etc., that he gives me I follow. My PCP…well… I had to switch from another PCP due to the fact that he sent me to a behavioral specialist and said I was depressed when I provided him with a 2 page list of symptoms. When he wouldn’t listen, I dumped him like a bad habit.
Now, I’m at the same clinic, but a different site (closer to home). My current PCP started to exhibit the same issues as my previous one. I am also dealing with PTSD from an unrelated incident, so his focus has been on that. I recently reminded him of my physical issues along with some alarming test results. My cousin is also a NP, and she believed that due to my symptoms and blood test results I might have another autoimmune disease (or worse). I brought this up to my endo, who in turn said “Yea—you need to see a specialist ASAP” and sends a referral to my PCP. My PCP in turn, sends my info to an …allergy specialist??? What the H. E. double toothpicks!! An allergy specialist?? Needless to say, I wasn’t real happy about that.
He claimed that the powers-at-be reviewed my chart, and sent it to an allergy specialist instead of a hematologist (who he recommended view my chart). The allergist in turn said—although you have ALL these other issues–you have no reoccurring infections…so you’re fine…walk it off. So, I go online and send in requests myself to see a hematologist for my blood results, and a rheumatologist for the autoimmune concerns. My PCP shoots both requests down. I then called the complaint office for the clinic just to vent my concerns. They then decide to call the PCP on my concerns FIRST instead of talking with me about it (way to keep my concerns confidential there guys). My PCP sends me an email saying he’s sorry for not handling my needs and that he did not know all of my issues. He then sends in the request to see a rheumatologist and lets me know if I want to part ways, there’s no hard feelings (hey, I got my referral!!).
I might be paranoid and I REALLY like my endo (since he is also T1D). My question is should I switch my PCP? Or should I give another chance? (I’ve already made peace with him in another email and he has done the same—I think even with the ‘complaint’ the relationship will be OK). My endo and PCP are at the same site, so there’s my ‘dilemma’. I can get another PCP there, but I have the feeling there will be some awkwardness??? Besides, this will be #6 or 7 in switching doctors, and I’m honestly tired of going through the phase of “getting to know your doctor”. I already have chronic fatigue, so I just really don’t have the energy to deal with all that again. Any advice, thoughts, similar complaints will be appreciated. Thanks.