This is actually going to kill me

(SuperSam101) #1

This disease is actually going to kill me. I am writing now on a blood glucose of 19 and it hasn’t dropped below 16 for a month and a half,

(Ray) #2

Sam you should seek assistance from your medical team (endo, educator, etc). I’ve had experience with sugars not coming down for a few days do to illnesses (cold, flu) but never for that long of a period. Wishing you well.

(joe) #3

@supersam101 didn’t you have a hypo 8 days ago? Anyway. A good walk will bring down most stubborn highs unless you are sick with a cold or taking steroids. You probably should have s long talk with your doctor.

(BookwormNerd13) #4

Sam @supersam101
It sounds like you should talk to your doctor or care team. Everyone has periods when their T1D is a bit harder to control but yours sounds like more of a long-term problem, both physically and mentally. If you haven’t already talked to a therapist, I recommend doing so. Tell your endo about your concerns with your blood sugar levels and your negative feelings towards your condition; they’ll be able to help you find a way to deal with both.
Best of luck :slight_smile:

(SuperSam101) #5

@bookwormnerd13 I did speak to my doctor… He made it worse… And I don’t need to talk to a therapist, for what… “oh, the world hurt my feelings”

The therapist: “yeah that happens”

(Richard) #6

So… what are blood sugars? 19? you mean your H1c? I have been T1 for 40 years. I fought with every doctor i have ever had. I have done the dummest things you could imagine. But I also pre-date synthetic insulin and most of the tech we use today. My body does not come up with orange juice, a walk does not bring it down. In essence, I am about as T1 as you can get. Took me a long time to defend that. Now life is easier. I was never easy to control So I learned what I needed to do. Dr didn’t do much. So now I tell them what I did to fix me. Not the other way around. But I am 47 now. If you are still young, then that is a factor and you will have no choice but to rely on doctors… But I am curious…

(Dennis J. Dacey, PWD) #7

Hi Richard @liti1gator,
A BS reading of 19 mmol/L is equivalent to a BS reading of 342 mg/dl; 16 mmol/L = 280. An HbA1c of 16% indicates a minty day BS average of 420 mg/dl or 23 mmol/L.

Being another ‘old-timer’ myself having been diagnosed with diabetes [long before refinements in names such as “A Type”, “C Type”, “TypeOne”, etc. came into use] and many of the new technologies came into existence, I firmly agree with you that we must be fully aware of our own bodies and be able to “read” how we are feeling and why. Certainly many of these new technologies are wonderful but if a newly diagnosed has relied solely on certain tools [such as CGM] and it fails for some reason trouble could ensue.
On another of your points, I’ve had some really interesting “arguments” with an endocrinologist advising me who also happened to have diabetes.
And To tie this deviation into the original topic line; yes Sam, diabetes will kill you. That is, it will if you do not take an interest in your well being and set your goal to properly managing your diabetes and go on to live life as a real person - I’m pushing 80 years old and I’ve had diabetes since I was a kid.

(Richard) #8

I’m happy to meet you my friend. The best endo I ever had started our very first conversation with “you know that this will kill you someday, right?”. That’s how I knew he was legitimate. Because it was true. The question is when. That was up to me. We are different. It affects every second of our life’s. I just hope these younger kids learn to accept it and go from there. I consider myself lucky to only know this part of me. To be diagnosed as a teenager, in my opinion , would me a much worse fate.


(Dennis J. Dacey, PWD) #9

It’s good meeting you Richard @liti1gator, I’ve enjoyed reading your comments - yes, I read every post to this site. Let me offer you a Welcome to TypeOneNation and a new member - one experienced with living fully with diabetes.
what you quote above is true in many cases, but not in all. It is true that diabetes has the “ability” to kill, and that was recently brought to my attention by one of my sisters when she announced for everyone to hear “… you were supposed to be dead more than 50 years ago” - this was at a banquet with many listening. It is true that when I was diagnosed in the 1950’s that very few who were diagnosed with [juvenile] diabetes lived to adulthood - my siblings all knew that but luckily I was never told.
I really didn’t take care of myself for the first two decades but then had a change of mindset and began treating myself as a science project and learned all that I could, and volunteered my body for many trials [and errors] helping advance diabetes management and care. It wasn’t long ago that an endocrinologist said that would die WITH diabetes but that it would NOT kill me.

(Richard) #10

True… I guess what I meant was , we won’t die of old age. They will always attribute it to complications of diabetes.