I was just wondering if there were other families out there involved in TrialNet. http://www.diabetestrialnet.org/index.htm
We got involved after my oldest daughter was diagnosed. I asked the pediatric endo on the day Ellie was diagnosed how we could have our youngest daughter checked. The dr. said we wouldn't/shouldn't want to know. I wasn't happy with that, so we got involved in what was then called PANDA (and is now rolled into DAISY) out of the University of Iowa.
We found out that my husband has the high rish genes (go figure), and both of our daughters had the high risk genes (gotta love the genetics you learned in 8th grade).
About 18 months ago, our pediatric endo clinic became a site for TrialNet and we joined (seems I'm always pushing them into new ideas - TrialNet, pumps on kids, CGMs on kids). We knew we would go through the phases since we had results from PANDA. Anyway, my youngest daughter is now in Phase III of Trialnet, meaning we go in for about five hours every six months or so.
Our hopes are - with Anna's increased risk, if signs do start to show diabetes developing, we can be involved from the get-go in a prevention trial. I would do anything to prevent Anna from developing full-blown type 1 diabetes.
For those who have participated - are you glad you did? Would you do it again if you could go back? What do you hope to get out of participating the clinical study?
For those who have not - I'd be interested in your sharing your reasons so other families can make a decision for themselves.