Type 1 Diagnosis as Adult?


(Dennis J. Dacey, pwD) #21

Hi Donna @dbuchana, I like your philosophy about accepting what you have and move forward. That is, in my eyes, what it will take to live a full, productive life - and we now have so many great tools to assist us.

And with a broad smile on my face, I’ll tell you that you are one of the “lucky ones” being able to wait 56 whole years before your diagnosis; some current teaching that each in our “select” group was born with diabetes, or at least with the necessary mix of genes and those other determinants. Being diagnosed in the last 11 years means there is much that you don’t need to UNLEARN - the recent discoveries and developments in diabetes are mind-boggling. A lot of the “new stuff” is thanks to JDRF.


(Donna) #22

Couldn’t agree more. The tools available today make it so much easier. Don’t know if I’d have made it 11 years if I was diagnosed as a teen or younger. My CGM has been a lifesaver (literally).


(carl benwon) #23

Thanks Donna. I still struggle; however. A lot! Not my sugar. Not my diet. Not my injections. Not my pricks. Just the endless mindfulness. . .

Something about rhythm.

f-d


(Donna) #24

I understand completely. Sometimes you just want to be normal and not have to consider all that we think about day in and day out. I guess when I really get down, I try to focus on how good I have it compared to so many others in this life. I try to remember that I still have relatively good health, I can do most things that I want etc… That is what helps me to stop feeling sorry for myself and it usually works. Staying positive helps put all this other stuff in perspective.


(carl benwon) #25

I also have a lot to be thankful for. The consequence of my diagnosis was I lost 40 pounds and have kept it off! Surprising to see myself again in sizes I hadn’t worn for over 20 years! So, in my own eyes, I’m looking pretty good! Tall, slim, smiling, but. . . Folks don’t know my real struggles. Not being drawn to pity, I get that! Still though, there is loneliness with type 1 diabetes, even with supporting folks in your life. I’ll adjust in time. . .


(Donna) #26

Yeah, I agree with that. That’s actually why I finally started looking at websites like this one. It’s not quite the same as having someone you can go for a walk with and have real face time with, but it helps. Best of luck to you! Keep your chin up and take one step forward at a time🙄


(Andrew) #27

Hi Ashely,

I don’t know if you are still reading these posts or not… but I wanted to share my experiences with you. I am now 46 years old. I 1st went to the Dr after losing sight in both eyes, I was 33… not a blackout, just couldn’t focus on anything beyond my nose. I went to the ophthalmologist and after numerous lenses were placed in front of my eyes I could see!!! Sign me up with a pair of them goggles and I’ll be on my way… :slight_smile: She then started asking me questions about peeing a lot, constant thirst etc… and after I answered I was told that I probably had diabetes. I said diawhatees??? I went to the hospital right after and had a BG reading of 38.9. A shot of insulin and a lot of sleep and I literally woke up a diabetic…

They diagnosed me with type 2, gave my pills and sent me on my merry way… 3 months later I had lost 65 pounds and my Bg’s were crazy everywhere! I went to the Dr and was told that I was depressed??? ( I wasn’t crazy overweight, but weighed around 200 lbs I weighed 130 when I was diagnosed a T1) Sure I was bummed out but I was happy, hungry and eating well… these facts fell on deaf ears and I had to jump through the hoops and see a psychologist… Complete waste of time and I was still losing weight.

I ended up at the hospital again, this time I walked away a fully fledged T1 !!! Insulin pens and all. I also met a wonderful Dr who was stationed at the diabetic walk-in clinic where I was being treated. She eventually left the clinic and I was told that someone new would be looking at my file and following me??? WTF? I finally find someone who I trust, am comfortable with and will probably out live me and she disappears because of clinic rotation, job reshuffling??? I had to hunt her down myself (not in a stalker kinda way), just found her e-mail through a University web and dropped her a line. Now I have a full team following me and kicking me in the butt when I need it.

So I was originally diagnosed as a T2, and now am a T1 with my insulin pump, carb counting, insulin correction formulas etc…

Crazy path I’m on… My daughter was diagnosed at the age of 2, she’s now 8 and hoping to start the actual pump or omnipod variant. That’s all I’ve got I hope is was worth the read. :wink:


(Kim) #28

Hi Ashley,

Diagnosed this year at 39. Gestational diabetes with my son, a misdiagnosis of T2 for 3 months and then T1. I can tell you this, it’s not the end of the world. Living with what I thought was T2, to me, was worse. It’s forced discipline and focus on your health—in a way no one else has to. But if you take care of yourself, despite the T1, you’ll be the healthiest person you know. Eat right, exercise, be compliant and let yourself enjoy your life EXACTLY the same way—with a few little modifications. Do yourself a favor, if you haven’t read “Think like a Pancreas” do so immediately. You’ll feel empowered by the information and it will allow you to become your own best advocate much quicker. All the best to you.


(Charles) #29

Alrighty then 4 yrs ago @ 53. But this I really my first tries at more education about diabetes. NOT because I didn’t want more education, but when you go blind from the disease! It’s a bit difficult to enjoy online info! After 4 yrs treatments I’m here!

Let me state this being type 1 is a pain! Not very many people including Drs do not, I repeat DO NOT understand type 1 D.
Trust me on this. In reality, no one but you understands you and what’s going on with you and your body. I am not blaming anyone for this, but the disease is too complicated, has too many symptoms and expresses itself too many differet ways for anyone to understand… The best thing(advice) I can give you is this. Only know you! Drs will try to understand and help. BUT because of the nature of medicine and our own human trait they tend to put and look at things in generalities. It is the most practical way to try and help. This is coming from someone who does not fit into all the norms for T1Ds. I have had more than one discussion (s) with MDs that don’t understand this disease, even tho they think they do! The best attitude a Dr can have with type ones is very simple ok you say your this way, let’s prove it or disprove it.

If they have this attitude it greatly improves your relationship with them. They can use science to say yep it sure does what you said. After enough times (Of being right) they will believe you and start to test in the ways you indicated when they are diagnosing your problems.

Long way of saying this but only you are in control of you! If you think so keep pushing till you have definite answers one way or another. I always think about what I’m doing to me when I eat or drink anything. What will this do to me? It’s my life I’m playing with and it’s up to me if I live or die from what I do. Trust me I don’t wanna die anytime soon. Being diabetic is frustrating, lonely, depressing and a major pain in the butt! But, no matter what it’s not gonna change, YOUR DIABETIC !! What happens (fit the most part) for the rest of your life depends on you and you alone!

Ok rant over but, do what’s best for you damn the torpedos and move forward. Make yourself feel better and keep moving forward towards managing you and your disease to the best of your ability using all the resources you can. Make the best decisions based on your reactions to meds, foods etc. because no on understands you better than you. Also the only stupid question is the one you didn’t ask. It’s usually the one (question)that comes back and bites you in butt too!

Keep on keeping on!
Charlie


(J Annette) #30

I was diagnosed at 36 after having pancreatits that damaged my pancreas. For years the doctors said I was type 2 but nothing was bringing down my BG. I later found out that if you are T1D LADA that your pancreas will not show antibodies for a while. It will slowly stop making insulin until it just stops. This confuses doctors. I recommend that they do other test like peptides and some other indicators that so little insulin production. Good luck. I will try to check back to this site but I am working crazy as the holidays are coming.


(Dennis J. Dacey, pwD) #31

Hi Annette @jadiaz831 , it really doesn’t matter which number is attached to the half dozen different conditions given the label "Diabetes Mellitus"l at least three can be managed very well with insulin MDI. Specifically TypeOne is caused exclusively by the autoimmune system malfunctioning and attacking its own body and destroying Beta cells.