Hi, I am a very upset T1D of a 12 year old boy that has had diabetes for 2 years. My husband recently took a new job that we thought would benefit our family. We even made sure we read through all the new benefit materials, but yet now for over 2 months I have been working with Omni Pod and his Dr. to get his pods for his Omni pod that he has been on well over a year. His insulin went from $4 a month to $75 his pods were going from $40 a month to $120 a month. Now after 2 months of calling almost daily to see when he can get his new pods, BCBS Anthem says that his pump is not medically necessary and they aren’t going to cover. Yes, I know we can file appeal after appeal, but WHY? I know JDRF supports new innovations, and peoples hard earned dollars are being donate to the cause and most are never able to actually use any of this technology. I want to know what is JDRF doing to fight for better insulin prices, or fighting to not allow insurance companies to tell you that something isn’t medically necessary that improves your life? What is the point of all these new innovations, if only the elite can afford them, since insurance companies play GOD with your child’s health. My son is mentally having a hard time with his diabetes and yes his A1C has not been the greatest, but he is also going through so much mentally the pump is the only thing that keeps him somewhat healthy. He will not give himself shots, so how would him going back to pens help him? It’s only going to send him to the hospital, which I think would cost the carrier more than covering his pods. I will scrap borrow and steal to keep him on this pump with or without insurance, so I don’t have to see him cry even more and become more depressed, but what happens when he is a man or I am no longer here? Will he continue to fight or will he just give up? T1D have to fight for their life daily, now they have to fight with insurance carriers to live a more healthy life, HOW IS THAT FAIR!?! Then if you do happen to get approved, and you become more healthy they say you then no longer need the pump. What logic is that!??? There should be more regulations in place that protect T1D. When is someone going to March on capitol hill for these children?? These JDRF walks should not be at your local park raising money for something some of us will never be able to obtain, they should be taken place in front of BCBS, UHC, Kaiser, Capitol Hill, with picket signs telling them to end the fight for someone who is already fighting daily.
Thoughts of a protective T1D mother that wants to see real change.